Surveyed common data access policies preferences amongst European Reference Networks. - Alberto Cámara Ballesteros; Nirupama Benis; César Henrique Bernabé; Inés de Oliveira Coelho; Clémence M. A. Le Cornec; Aylin Demir; Bruna dos Santos Vieira; Jose Antonio Ramírez; K. Joeri van der Velde; Shuxin Zhang; Ronald Cornet; Annika Jacobsen; et al. (SWAT4HCLS, 2023)

A Resource for Guiding Data Stewards to Make European Rare Disease Patient Registries FAIR. - Philip van Damme; Pablo Alarcón Moreno; César Henrique Bernabé; Alberto Cámara Ballesteros; Clémence M. A. Le Cornec; Bruna dos Santos Vieira; K. Joeri van der Velde; Shuxin Zhang; Claudio Carta; Ronald Cornet; Peter A. C. 't Hoen; Annika Jacobsen; et al. (Data Sci. J., 2023)

Building Expertise on FAIR Through Evolving Bring Your Own Data (BYOD) Workshops: Describing the Data, Software, and Management-focused Approaches and Their Evolution. - César Henrique Bernabé; Lieze Thielemans; Rajaram Kaliyaperumal; Claudio Carta; Shuxin Zhang; Celia W. G. van Gelder; Nirupama Benis; Luiz Olavo Bonino da Silva Santos; Ronald Cornet; Bruna dos Santos Vieira; Nawel Lalout; Inês Henriques; et al. (Data Intell., 2024)