"Code of ethical practice" for sharing and access to personal data for AI-/ ML-based technologies in rare diseases genetic NBS research project: a collaborative construction in a European IMI project. - Sylvia Martin; Aneta Piperkova; Jana Zschüntzsch; Edith Gross Sky; Joern Schenk; Daniel Theisen; Gergana Kyosovska-Peshtenska; Mats Hansson (AI Ethics, 2025)